1 in 42. 

Today’s blog post is a hard one for me. hard to talk about, hard to say. or rather type. Let’s start at the title. 1 in 42. 1 in 42 boys will be diagnosed with ASD. 1 child in 68 will be diagnosed . It occurs more in boys than girls.

My child is 1 in 42.

Today we walked for Autism Speaks. It was a 5k To help raise awareness for autism. To let people know just how special these kids, teens, and adults are! There was all sorts of vendors like Dunkin Donuts offering free coffee and donuts to everyone and LEGOLAND Resort FL was sharing what all they do for the community, which incedently is a a lot and that is why I love them both.There was a lot of good today friends. With all the hate on every platform just know friends there is good. Today was full of good. There is good in the world. To kind of quote Samwise Gamgee from LOTR .

Tried finding the original source but ended up on awild goosechase on pinterest. SO credit to the maker.

Autism is nothing to be  ashamed of. It is difficult on all, financially and emotionally.There was an estimated average that families with an Autistic child can spend up to $60000 a year on the child. And my mind is still trying to grasp that concept. but when you figure insurance and special therapies it can add up.

Some programs are expensive and so families come to seek help from places Like Easter Seals and Autism speaks. Easter Seals has helped so many families. So many people, my family included and I don’t think I could ever thank them enough.

My son’s diagnosis was horrendous . The physician treated me like I was a horrible  delinquent parent. I didn’t know I got a medical degree to know that his lining up the trains and Legos was a precursor or even lining up my nail polishes. He spoke some words but I thought he was just quiet. I was mortified.  I didn’t go back to that doctor .

So parents if your son or daughter starts lining things up and isn’t playing with the toys, or is obsessively doing it. Speech is delayed, etc. they have a skill and loose it.Example using a spoon and then unable to use the spoon. Please go get an evaluation. I have met quite a few parents who didn’t get the diagnosis until much later. The earlier the better. Educate yourselves. 1 child in 68 kids. There is no early detection. There isn’t a “cure” or my personal fave “growing out of it”. It isn’t about race, doesn’t matter. And today there were people of all walks of life at the walk .

Gosh now I am crying and I didn’t want to.I am a proud mama bear to my little bear. He is perfect and every new milestone he has we celebrate. It is a learning process for all of us. Especially for him.

1 in 68 children.1 in 42 for boys .My tiny child was 1 in 42.

For more info or to get assistance

Check out:

Autism Speaks

Easter Seals (Easter Seals is amazing)

 

 

Linkup

I do deClaire

Sheelawrites

10 Comments

  • Molly November 13, 2016 at 6:42 AM

    Thank you for sharing this. Your son is such a cutie! It’s obvious to me that you are a wonderful mother and your son is very blessed to have you.

    Reply
    • Stephanie November 13, 2016 at 7:32 AM

      Thank you molly. It means a lot. This post was a hard one to write. So hard.

      Reply
      • Molly November 13, 2016 at 10:51 AM

        You did an excellent job. 🙂

        Reply
        • Stephanie November 13, 2016 at 2:21 PM

          Thank you

          Reply
  • Laura November 14, 2016 at 1:24 PM

    You are so brave for sharing this. So very brave! Early intervention with speech therapy, occupational therapy, and other therapies is so important. Knowing what to look for helps get an earlier diagnosis and early intervention. Your story will help to educate so many other people! Your son is amazing and you are an incredible mother to him!

    Reply
    • Stephanie November 14, 2016 at 8:22 PM

      Thank you so much lara. You are so right! Early intervention is important. We got diagnosed earlier, at his 2yr appointment. But let me say better safe than sorry when it comes to these milestones so many parents don’t think any thing of delays that may not seem important. But, they are! Make sure the dr checks. He said please the other day and I was so proud! SO very proud.

      Reply
  • juliettsstyleglam November 15, 2016 at 12:54 PM

    Chai, ( which in my local language means you’re brave and strong for writing this and sharing it ) You enlightened me in more ways than one cos I’ve never really made a lot of research into this. You’re a good mother and a brave one too.

    Reply
    • Stephanie November 15, 2016 at 3:17 PM

      Thank you so much! It really means a lot! 🙂

      Reply
  • yuka November 19, 2016 at 8:48 PM

    What a great cause. I’m so sorry that first doctor was so awful. I hear stories like this all the time about how insensitive doctors can be, its really a shame.
    Anyway, Your boy is beautiful! <3

    http://www.prettyinleather.net

    Reply
    • Stephanie November 20, 2016 at 10:19 AM

      Thank you Yuka!! It is isn’t it? I have heard quite a bit of horror stories too. Sad isn’t it.

      Reply

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