Today’s blog post is a hard one for me. hard to talk about, hard to say. or rather type. Let’s start at the title. 1 in 42. 1 in 42 boys will be diagnosed with ASD. 1 child in 68 will be diagnosed . It occurs more in boys than girls.
My child is 1 in 42.
Today we walked for Autism Speaks. It was a 5k To help raise awareness for autism. To let people know just how special these kids, teens, and adults are! There was all sorts of vendors like Dunkin Donuts offering free coffee and donuts to everyone and LEGOLAND Resort FL was sharing what all they do for the community, which incedently is a a lot and that is why I love them both.There was a lot of good today friends. With all the hate on every platform just know friends there is good. Today was full of good. There is good in the world. To kind of quote Samwise Gamgee from LOTR .
Autism is nothing to be ashamed of. It is difficult on all, financially and emotionally.There was an estimated average that families with an Autistic child can spend up to $60000 a year on the child. And my mind is still trying to grasp that concept. but when you figure insurance and special therapies it can add up.
Some programs are expensive and so families come to seek help from places Like Easter Seals and Autism speaks. Easter Seals has helped so many families. So many people, my family included and I don’t think I could ever thank them enough.
My son’s diagnosis was horrendous . The physician treated me like I was a horrible delinquent parent. I didn’t know I got a medical degree to know that his lining up the trains and Legos was a precursor or even lining up my nail polishes. He spoke some words but I thought he was just quiet. I was mortified. I didn’t go back to that doctor .
So parents if your son or daughter starts lining things up and isn’t playing with the toys, or is obsessively doing it. Speech is delayed, etc. they have a skill and loose it.Example using a spoon and then unable to use the spoon. Please go get an evaluation. I have met quite a few parents who didn’t get the diagnosis until much later. The earlier the better. Educate yourselves. 1 child in 68 kids. There is no early detection. There isn’t a “cure” or my personal fave “growing out of it”. It isn’t about race, doesn’t matter. And today there were people of all walks of life at the walk .
Gosh now I am crying and I didn’t want to.I am a proud mama bear to my little bear. He is perfect and every new milestone he has we celebrate. It is a learning process for all of us. Especially for him.
1 in 68 children.1 in 42 for boys .My tiny child was 1 in 42.
For more info or to get assistance
Easter Seals (Easter Seals is amazing)